Home Sweet Home

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Last Wednesday I met my radiation oncologist at the hospital and swallowed my little radioactive pill. My husband dropped me off at our church’s missions house and I spent 2 1/2 days in seclusion. 52 hours, 9 movies (I think), 2 mini-series, 1 church project, 8 Classical Conversations/home school projects, and 1 case of bottled water later, my sweet family picked me up. Hugs and kisses all around! It’s good to be home. I missed my couch, my chair, my bed, my girlies, my husband, my sudoku puzzle book (I forgot to take it with me), and not necessarily in that order. I did, however, get to spend over 3 uninterrupted hours on the phone. (My girls can ignore me ALL day until my phone rings. They think it is their “now is the time to ask mom lots of questions” alarm.)

My family had decided we would celebrate my recovery and return to the general population. I thought we were just going to dinner. We headed downtown to eat at Hideaway Pizza. After being seated, one of the managers came over with a balloon bouquet and my favorite gift bag (thanks, Huntington Fine Jewelers). My hubby had already dropped off the balloons earlier in the day and had packed the gift bag in the diaper bag. He’s sneaky that way. Our waiter came to the table and said, “Wow! Are we celebrating a birthday?” My hubby explained I just finished my treatment for cancer and we were celebrating. Our waiter was so kind and seemed genuinely excited for the news as he offered his congratulations. Lydia, my oldest, enjoyed explaining the significance of the pink, purple, and teal balloons. I did not realize that those are the colors for thyroid cancer. (I know, I know, there is a color for everything. But it is less annoying when those colors become personal.) That also explains why I was presented with pink, purple, and teal beads for my Pandora bracelet. Such a sweet gesture on the part of my family. Not only to buy me a gift, but to put that much thought into it.

We ordered our meal and just enjoyed being together as a family. I have very funny girlies and, oh, how I had missed them! I was filled in on all that I had missed: Emma’s new words, Lydia’s art camp, and how they passed the time with daddy.  Lydia also informed me that they had a fun evening planned, complete with DJ’s Southern Snow (our favorite snocones) and a trip for the girls to the splash pad. I was all in. Toward the end of our meal, our waiter walked up to our table and had some news. “The party that left a few minutes ago, table 75? They overheard what you were celebrating and they paid for your meal.” Unknown to us, they had written a note to their waitress to get our check so they could pay for it! What a blessing! I really wish I knew who they were so we could thank them, but yet, that’s probably exactly why we didn’t find out until they left. I think the greatest satisfaction comes from doing a good deed and not getting public recognition for it.

Yesterday, I had a full body scan and scan of my neck. My oncologist called yesterday afternoon and said everything looked good and he would see me in 6 months. It’s good to know the cancer hadn’t spread and everything is going as it should. I am one blessed woman and God has been good to me. I recently had someone tell me, “You have missed out on so much because of the choices you have made.” And maybe I have missed out on some things, but they pale in comparison to what I would have missed had I not made those choices.

I close with words that have been playing in my brain all week.

Be still, my soul; the Lord is on thy side;
Bear patiently the cross of grief or pain;
Leave to thy God to order and provide;
In every change He faithful will remain.
Be still, my soul; thy best, thy heavenly, Friend
Through thorny ways leads to a joyful end.

Be still, my soul; thy God doth undertake
To guide the future as He has the past.
Thy hope, thy confidence, let nothing shake;
All now mysterious shall be bright at last.
Be still, my soul; the waves and winds still know
His voice who ruled them while He dwelt below.

Be still, my soul, though dearest friends depart
And all is darkened in the vale of tears;
Then shalt thou better know His love, His heart,
Who comes to soothe thy sorrows and thy fears.
Be still, my soul; thy Jesus can repay
From His own fulness all He takes away.

Be still, my soul; the hour is hastening on
When we shall be forever with the Lord,
When disappointment, grief, and fear are gone,
Sorrow forgot, love’s purest joys restored.
Be still, my soul; when change and tears are past,
All safe and blessed we shall meet at last.

“Be Still, My Soul”

Author: Catharine Amalia Dorothea von Schlegel, 1752, cento
Translated by: Jane Borthwick, 1855
Titled: “Stille, mein Wille”
Composer: Jean Sibelius, b. 1865, arr.
Tune: “Finlandia”

Kiss me, I’m radioactive

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I met my radiation oncologist this past Tuesday. He was very encouraged from my surgery. Even though the nodule on the right side showed signs of cancer, the left side did not! My oncologist likes to wait until thyroid levels are at 35 to administer the radioactive iodine (RAI) and sometimes it can take up to 6 weeks post surgery. This is called a thyroid ablation and it is to destroy any remaining thyroid tissue. We did blood work last Tuesday to check my levels and we had scheduled to do blood work every two weeks until I reached the desired level. I was hoping to be where I needed to be before the middle of August (we have plans to get away for a couple of days before school starts back up). They do a scan of my thyroid a week after the RAI is administered to make sure everything is going as planned. About a month after that, I will do another scan to ensure all of the thyroid tissue is gone. My oncologist gave me a 99.9% chance of the cancer never returning. He smiled as he told me, “You are a cancer survivor!” Sweet words to my ears.

I am very blessed in that I have not been too tired so far on this thyroid-less journey. There have been two Saturdays that I had to rest quite a bit, but really, it hasn’t been all that bad. I’ve tried really hard to keep my husband from staying home from work, but this last week he decided he wanted to spend a little more time around the house to help me out. He called a friend of his to fill the pulpit this coming Sunday so he could concentrate on being home and not have to study in the office every day. This would allow him to help out with the girls and he could still study from home during naps. (The girls naps and mine.)

Caution: radioactive materials

Caution: radioactive materials

Monday morning the oncologist called. He had scheduled my appointment to take the RAI and he had scheduled it for this Wednesday! I will meet him at the hospital Wednesday morning and I get to swallow that little pill that is encased in a glass vial encased in a lead pipe. (This dosage is about 60 times higher than the dosage I took when they found the nodule to begin with.) I have to be away from my hubby and girlies for 48 hours, so I am blessed to be able to stay in the church missions house for two days. I have already gotten things ready for my stay (I feel like a doomsday prepper) by stocking it with: easy foods so I don’t have to use the cook ware, disposable plates and plastic ware so I don’t have to use the regular dishes, old towels that I can just toss when I’m done, and lots of projects to keep me busy. Did I mention the chick flicks? The missions house doesn’t get regular TV, so I’m taking the wii to hook up for the use of dvds and Netflix. I will really be suffering. (Don’t get me wrong. If I was a betting woman, I’d bet by Wednesday night I’ll be calling my hubby lamenting the fact of how bored I am.)

My husband on the other hand will have sole responsibility of three girlies. By himself. Alone. With no safety net. I don’t know that he’s ever had all 3 together by himself for more than a few hours. So I’m sure by Friday night he will be ready for his wonderful wife to come home so he can stop watching Doc McStuffins and Little Einsteins. (Andy Griffith is thrown in there, too, but he doesn’t seem to mind those. I blame Bro. Ted.) And I expect him to gravel at my feet and realize I really do wear a Wonder Woman cape to get through the days. Ha! Seriously, he acknowledges being a mommy is a hard job. He says often he is glad God made him a man. I have no doubt he will be just fine. He is a fabulous daddy and his girlies adore him. He will have everything under control. And if things get too rough, he can always call Memaw. She’s always up to the challenge.

After I got off the phone with the oncologist I had to laugh. Isn’t that just like God? Here my husband really felt like he needed to arrange his schedule to accommodate me and asked someone to fill the pulpit to help make that happen (knowing he may have to do that again once I had my treatment). Yet God knew the whole time that I would have my treatment the same week every single thing had been arranged! That may not seem like a big deal to some, but to me that is huge. Not only that, but by the time we go out of town for a couple of days, I will have been on my thyroid replacement meds for almost 3 weeks. Plus, all of this is done before school and Classical Conversations start back up. And before Choral Society resumes its regular season. I love how God is in the details. No problem is too big and no detail is too small.

So if you think about it, would you pray that this RAI will do everything it is supposed to and that the subsequent yearly visits are just routine? And pray for the hubster. His schedule will be much more hectic than mine the rest of this week.

Thyroid surgery number 2

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Last Monday, June 30th, I had my second thyroid surgery. They took out the left side of my thyroid, so now I am thyroidless. (I was really hoping that the thyroid weighed somewhere around 25 pounds, but alas, no.)

The original plan was to do an outpatient surgery, but I bled more this time and they had to install a drainage tube. I had the pleasure of staying overnight again. I was a little more alert this time after getting out of recovery. My husband was there for the surgery, but he had to leave at noon to take our church kids to camp. So I spent most of the day sleeping, flipping channels on the TV, and dining on chicken broth and jello.

I met with my surgeon yesterday. He said the incision looks good and the swelling and puffiness above the incision should go away in a couple of weeks. He’s confident that he got everything and that I should be fine from here on out. He has now referred me to an oncologist that I will see every year and a radiation oncologist. The radiation oncologist is the one to administer the RAI (radioactive iodine) and that appointment is next Tuesday. Unfortunately, my husband is out of town that day, so I will be going by myself. But I’m a big girl. I can handle it. If you know me, you know I am just a little bit independent at times. I am starting to write down questions to ask the oncologist so I can make sure I know what all is going on and what to expect. I need to write stuff down or I know I will forget something.  When you try researching on your own on the internet, you get all sorts of stuff to muddle through. I’ve read that I have to be away from my girls anywhere from 2-7 days. My doctor doesn’t think it will be a whole week, but that’s a question for my oncologist. (I finally gave up looking online. It can get depressing.)

Since the hubby was gone last Wednesday, we had a guest preacher. He preached on Psalm 121. What a great reminder of the God I serve. The creator of the world is my God. He created all that there is and He created me. The God who created the billions of stars cares about little me. He is my helper and my keeper. He will not suffer my foot to be moved. Psalm 37:23-24 states “The steps of a good man are ordered by the Lord: and he delighteth in his way. Though he fall, he shall not be utterly cast down: for the Lord upholdeth him with his hand.” I may stumble, but the Lord is there picking me up, protecting me, establishing my goings. Verse 4 of Psalm 121 tells me that “he that keepeth Israel shall neither slumber nor sleep.” Nothing takes God by surprise. I usually sleep 7-8 hours at night. Do you realize how much can happen in 7-8 hours? Yet, my God does not sleep, He is never caught off guard, and He watches over me day and night.

My cancer is no problem for my God. I may never know this side of glory why He has chosen me to travel down this road, but I know He is beside me every step of the way. I will trust in Him and follow His leading.

 

Surprise! 2011 was a banner year.

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So far my husband and I have experienced infertility, adoption, and a miscarriage. When we lost our first baby in June 2011, we had no idea what God would do next.

In August of 2011, we found out we were expecting again. I told my husband, “Go figure. 15 years and nothing. Then I get pregnant twice in less than six months.” 🙂 We went to the doctor and sure enough, I was pregnant. Our due date this time was April 28th. I was still 39, but by the time this baby would get here I would be 40 years old. 40 years old having my first baby. God sure has a sense of humor. I think the medical community calls this a geriatric pregnancy. Some call it crazy.

This pregnancy went really well. I got past week 11 and that took a load off of my mind. Then I got past the first trimester and I started to breathe a little easier. They say your chances of miscarriage really decrease if you get past week 13. Right before Christmas we found out we were having a girl. More pink, more froo froo, and more hair bows! I was starting to look pregnant and not just like I had too many burgers the night before.

In the middle of January, I got really sick. I had a bad case of the flu (we think) and was sick from Sunday evening until Wednesday. Thursday I felt well enough to paint Lydia’s bedroom, although I was having some sore muscle pain on my side. I called my best friend who suggested it might be from throwing up for 2 days. She also suggested if it got worse, to call my doctor. About 2pm I decided I needed a nap. When I woke up around 4, I was still having this weird pain. It wasn’t very strong, just annoying. And it wasn’t constant. It would happen about every 8-10 minutes and last about 10 seconds. Yes, I timed it. My doctor’s office closes at noon on Thursdays, so I called my sweet friend again and she suggested going to the ER if it continued to get worse. I told my husband about 6:00 pm that we should probably go to the ER and get this checked out. The worst thing they could say was that it was gas or something and send me home. He was not very excited about sitting in the ER for hours to find out it was gas, but he humored me.

There is an advantage to being pregnant. When we got to the ER and they saw I was pregnant, they took me straight back to labor and delivery. No waiting room for me. Nope. Pregnant women about to enter their third trimester are special. 🙂 I didn’t even have to walk, they wheeled me back there in a wheelchair. They hooked me up to some machines and told us I was in labor. Ummmmm. Excuse me? I am only 26 weeks along. I can’t be in labor. Besides, don’t you watch TV and movies? Women in active labor are screaming and writhing in pain. I was not in labor. The nurses hooked me up to something like magnesium to slow down the labor and monitored me for a little while. Once they felt I was stable, they transported me to Tulsa. Bartlesville is not equipped for babies born earlier than 34 weeks, so I got to ride in the not-so-comfortable-and-not-so-fast ambulance 40 minutes south to Tulsa.

At one point on our ride I asked the ambulance attendant guy when this magnesium stuff was supposed to kick in.  He looked puzzled. “The contractions aren’t lessening?” “Nope.” Instead of lessening, the pain was getting stronger. He nervously answered, “We’ll be there in about 10 minutes.” During this time, my husband was following along behind us in the car. Unknown to me, he had already started calling people and asking them to pray for whatever was going to happen that evening. I was in the ambulance praying God would intervene so that by the time I got to Tulsa I could say, oops, false alarm. But, regardless, I had this unexplainable peace that everything was going to be okay. I had no idea what condition this baby would be in, or if she would even survive, but I knew God was in control. Again, nothing happens to us that God does not allow.

I arrived at St. John in Tulsa at 9:00 pm. and was wheeled (this time on a stretcher) straight to labor and delivery. They checked all my vitals and told us we would have a baby sometime that evening. Ummmm. No, I was only 26 weeks along and we hadn’t agreed on her name!! Right after 9:30 the doctor I was sent to see said I had a couple of hours yet, so she went into a c-section. I would ask for an epidural, but the nurse would say she was waiting on my labs to come back. It wasn’t a problem, she said, I had plenty of time. Just before 10:00pm I told my husband something wasn’t right. The room at this point was empty so he went into the hallway for help. The nurse came in to check things out and then went back for reinforcements. In less than 1 minute my room was full of nurses and doctors. Our tiny little bundle was born at 10:01 pm weighing 1lb and 14 oz. and was 13 1/2 inches long. (and I never got my epidural. Do you hear the Wonder Woman music playing? HA!) She was small, skinny, purple, and looked like an alien, but she was one of the most beautiful things I had seen.

Teeny, tiny baby. The nurse is holding the tube up so she can breathe. They were in the middle of intubating her.

Teeny, tiny baby. The nurse is holding the tube up so she can breathe. They were in the middle of intubating her.

She couldn’t cry because her lungs weren’t fully developed. We quickly decided on a name (I won!) and little Emma LeeAnne was brought over to me. I didn’t get to hold her as the NICU doctor quickly brought her over, let me get a glimpse, then whisked her away to the NICU. A couple of hours later, Brian reminded me I was only 39. I had her before I was 40!

Here she is. All purple, all covered in cords and cables and stickers and all beautiful. She still has a scar from one of her stickers holding a cord in place. It's her tickle button.

Here she is. All purple, all covered in cords and cables and stickers and all beautiful. She still has a scar from one of her stickers holding a cord in place. It’s her tickle button.

The first few weeks were touch and go. Emma would have a couple good days and then take a big step backward. I will never forget the day the nurse practitioner came in and gave us the worst-case scenarios. Pretty scary stuff. But we continued to place Emma in God’s hands, the best place she could be. It was very hard for me. I wanted to fix it. I wanted to do something to make everything better and ensure Emma would survive. But I couldn’t. I firmly believe God places us in situations that require us to rely on Him for our strength. I couldn’t do it on my own, but I knew Someone who could. I don’t like the phrase “God will never give you more than you can handle.”  If we could handle it on our own, we wouldn’t need the Lord. I believe God gives us just enough to make us turn to Him and not rely on our own strength.

We spent 89 days in the NICU at St. John in Tulsa. I have to say we had the absolute best medical staff you could ask for. We absolutely loved our nurses and nurse practitioner. (We loved the doctors, too, but the nurses saw her and took care of her every day.) They took care of our sweet baby like she was their own. The first day I got to hold her was February 14th, almost a month after she was born. The day before our nurse found out I hadn’t held her yet. At this point Emma was intubated and she was so tiny, there was very little room for movement with her equipment. I received a phone call at home the morning of Valentine’s Day and was told Dr. Siddiqui wanted to arrange it so I could kangaroo with her. (Kangarooing is holding your baby skin on skin. It helps them feel the rhythm of momma’s heartbeat and many believe this is the first step to them really starting to grow and develop.) He told the nurses to tell me Happy Valentine’s Day. It was quite the task to get her moved out of her bed and into my arms, but I was told I could hold her as long as she would tolerate it. So we took advantage of it. I know we were there together for at least an hour.

February 14th. The first day I got to hold this precious gift. (Laying her head on your shoulder is still her favorite position.)

February 14th. The first day I got to hold this precious gift. (Laying her head on your shoulder is still her favorite position.)

Those 89 days were an adventure. She had numerous brain scans, pic lines, and lumbar punctures (spinal taps). She developed pneumonia at one point, so she had scans for her lungs for a while. She had countless bradycardia episodes and some tachycardia episodes (those usually happened when she was mad at the nurses.) She developed retinopathy, so she had a pediatric ophthamologist come visit often. She had a grade 3 brain bleed, and up until the week before she was discharged, the neurologist wanted to put in a shunt. But God held Emma in His arms and protected her from any major permanent side effects.

Lydia meeting Emma for the first time. Looking at her baby sister through the open nicu nurses window.

Lydia meeting Emma for the first time. Looking at her baby sister through the open nicu nurses window.

We finally got to take her home April 17th. Lydia didn’t even get to meet her until the day before we brought her home. Emma was born in the middle of RSV season, so no one under the age of 18 was allowed in the NICU. Lydia only got to see her via facetime on our phones. The first day she met her was through the nicu window.

In her car seat ready to go home. Big bow on her head and heart monitor on her body.

In her car seat ready to go home. Big bow on her head and heart monitor on her body.

She was 3 months old and weighed 6 pounds the day we took her home. They never did install a shunt. She went home hooked up to a heart monitor and wore that until June.

 

She is now a very happy, healthy, and funny two year old. She wears glasses due to a weak eye muscle and ankle braces because her ankles turn in slightly when she walks. Both situations we hope and pray are temporary.

Emma playing in the church nursery. The smile on her face says it all.

Emma playing in the church nursery. The smile on her face says it all.

She is still a little behind in her speech, but I have no doubt that she will catch up. To us, she is a miracle.  It has been said that preemies usually are caught up by the time they are two. Our physical therapist told us that they are rewriting the book on micropreemies, that they should be caught up by the age four. We have great physical and speech therapists working with her to ensure that happens.

We may never know why God allowed this to happen. But believe me when I say Emma is worth every second of every minute. I can’t wait to tell her her story when she gets older. We even ordered a doll that is her exact birth weight and length so she can see just how tiny she was. I hope she realizes what an absolute miracle she is. And we are blessed to be her mommy and daddy.

Lydia and Emma coloring Easter Eggs.

Lydia and Emma coloring Easter Eggs.